For families with severely disabled children, trying to live an ordinary life can be very tough. Having a severely disabled child can isolate the whole family. Things that most of us take for granted become huge challenges.
Local leisure facilities such as swimming pools are often not accessible to disabled children, so families cannot play together. Parents may not know where to begin telling stories to children with severe learning and communication difficulties. Ongoing illness can mean that severely disabled children miss out on education. Getting advice and support with dealing with especially challenging behaviour can be hard to come by.
